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Does anyone have the same problem as me?

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I’ve had this problem for as long as I could remember, and the only people I’m comfortable talking about it with is my family.

Ever since I was old enough to understand the difference between a normal person and a mentally Ill person, I’ve noticed something about my grandmother. She is slowly losing her mind, and I came to ask if anyone else has experienced this with a family member, and how to help deal with it.

As she loses her mind, I’m losing my patience. I lived with her, my grandfather, my uncle, and my parents up until last year, and I noticed her getting worse and worse.

Some of the things she does is as follows:

  1. She forgets things that were said earlier in the conversation, making her loop every conversation back on itself.
  2. She asks the same question 2-3 times in five minutes, even if you give her an answer each time.
  3. She will bring over my mail to my house (I still have it delivered at her house because I live in an apartment complex) at least once a week, even though I tell her not too.
  4. When I was a teenager, she still treated me like a little kid, despite her still knowing my age.
  5. She has to text me every day to make sure I’m all right.
    6?. She can’t cook. (That’s just me complaining, it has nothing to do with her mental illness)
  6. When she retired, she had no money saved up, and lives off of social security and nothing else.
  7. She is to ‘good’ to get food stamps, even though she totally could.
  8. She has to but into every conversation.
  9. She wants to keep renovating her house as much as she can, even though she can’t afford it.

I could easily list more, but I don’t want this thread to be too long. Does anyone else know what I’m talking about.

“Someone crack open a blast door!”

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Caring for someone with dementia can be very frustrating. My partner’s mother was a difficult woman to get on with before she got Ill. She would often try to lure him into abusive situations by use of her legacy. This used to upset him because he was self reliant and proud and just wanted to have a relationship with his only remaining parent, without the blackmail. So for many years they stayed apart with her pretending to have moved back to America at one point. Out of the blue he got a very shakily written letter saying she had had multiple heart attacks (plus the usual nonsense about the will). When he got there they had some moments to reconnect but she was miles away from where we live and we don’t have a car so visiting her was a whole day thing. He then found out his cousin had been aware of the illness and the increasing vascular dementia for years and had been pressuring her to change the will in his name. Or had he? It’s hard to tell with dementia sufferers what is real, lie, delusional or reconstructed narrative based in all three. Then the calls from the police started coming. She would use her free bus pass to travel from town to town and report her son for stealing from her when he was many miles away at work. This was very stressful and his drinking got very hard for me to handle. She would also try and give her things away to strangers and promise to leave her huge legacy to taxi drivers. She was terrified of dying alone so my partner worked with social workers to get her residential care and a financial guardian. She seemed to get on well there. Eventually she did die. Leaving him out her will as we all suspected but at least she wasn’t confused or prey to exploitation. There should be local groups where you can meet up with people in a similar situation and exchange coping strategies. If you don’t mind me asking do you know what kind of dementia your grandmother has?

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Ah, dementia is a shitty thing. I’ve dealt with it with both of my grandmothers now, and especially one of my grandfathers who had incredibly severe Alzheimer’s.

It’s difficult, very difficult. Especially if you knew them before the dementia set in. Some people might not understand your annoyance with the illness, but it’s a perfectly normal thing for it to drive you up the wall (though you do have to remember it’s not their fault and while it’s okay to be annoyed about it, it’s not cool to be mean to them for that reason).

There’s not much advice I can give other than to be patient and to honestly just distance yourself as much as you’re comfortable with and as long as it doesn’t put undue strain on your relationship with your family. At this point in time, she is not your responsibility and it sounds like with your grandfather, uncle, and parents living with her, she has plenty of a support structure around her.

Feel free to vent away here or our Emotional thread. It always helps.

Keep Circulating the Tapes.

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Patience is key, but medical professionals say that it’s extremely unhealthy for family members to be the caregivers of relatives with severe dementia.

The Person in Question

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moviefreakedmind said:

Patience is key, but medical professionals say that it’s extremely unhealthy for family members to be the caregivers of relatives with severe dementia.

I could agree with this. My mother had to take care of her mother after she had a massive stroke, and it was one of the most obvious stressful and destructive experiences of her life, to the point where I could clearly see the effects.

Keep Circulating the Tapes.

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My great grandmother actually recently died from a long battle with Alzheimer’s. It’s an incredibly difficult thing to watch someone slowly lose their mind. Saddest point was when she could no longer remember who me, my siblings, or my parents were. She would freak out any time we entered the room because she thought a bunch of strangers had broken in.

It’s hard, and the only advice I can really give is to do anything you can to be patient and understanding. I know it is frustrating and she may be annoying to deal with at times, but push through it and try and enjoy the time you have with her. My one regret with my grandmother is I started avoiding her, and I wish I had spent more time with her while she still saw me as her grandson.

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Bingowings said:

If you don’t mind me asking do you know what kind of dementia your grandmother has?

She doesn’t believe that there’s anything wrong, she refuses to go to the doctor. I’ve talked to a few people about her symptoms, and they can’t quite tell what kind it is. They know it’s a mix of Alzheimer’s and Dementia though. With my grandfather being the only one left living with her, because everyone else moved out at around the same time, he’s her only hope to live a happy rest of her life, but he wont do anything about it. I know he is hit with the worst of it, so he probably just gave up. It’s his responsibility to do something like that, but he just wont. Thanks for the support though!

“Someone crack open a blast door!”

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Tyrphanax said:

it sounds like with your grandfather, uncle, and parents living with her, she has plenty of a support structure around her.

Thanks for the support 😃. The rest of the people living with her, besides her husband, all moved away all in about a year or so, so that must be driving her even crazier, but what can I do? Go over and visit her more? I already do every week or so to get mail.

“Someone crack open a blast door!”

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I’d say a weekly visit is decent enough.

Don’t beat yourself up. You’re doing a good thing by visiting, but you can’t be expected to sideline your life and happiness to care for her.

Keep Circulating the Tapes.

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I don’t want to sound mean but for the sake of her remaining well being it might be a good idea to get a doctor in. If the dementia is vascular it could lead to strokes and heart problems all of which can be very painful and make her life and that of your family much worse than it already is.

It would also make sense to have an assessment of her capability for general safety reasons.
I once was called to a house where an elderly lady was trying to put a plastic electric kettle on a gas hob to boil water for her tea. Luck had it she forgot how to ignite the gas but we had to spend some time ventilating the room.

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Live-in care is a definite possibility. Maybe bring that up with the family?

Also… might be best to suggest your family start getting that power of attorney figured out because there can be a lot of headaches if it isn’t.

Keep Circulating the Tapes.

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